Thursday, January 27, 2011

01-27-11

It's been several days since I have updated everyone on Cooper.

He has been home now for five days now and is doing well.  We went in for our first of many checkups on Tuesday.  We met with our pediatrician and he was able to ease some of our fears now that we are on our own taking care of Cooper.  This transition has been interesting to say the least. 

We did find out that Cooper will eventually need to have physical therapy, occupational therapy, visits to a developmental specialist, along with our check ups with our pediatrician.  He may not need all of these for long periods of time, but because of his being on ecmo and all of the narcotics he was on, they do not know how his development will be. 

For now, we will have weekly weight checks with the doctor, along with our regular check-ups.  So, far, his weight has been averaging about 10 pounds 15 ounces.  We have to make sure that he is eating well, so we are also keeping track of every ml that he is taking.  Cooper likes to eat just enough that the doctors won't be putting him back in the hospital with the feeding tube in again.  Some days I really have to make sure that I harass him enough to get every ml in him that I can. 

Jaxon and Lea enjoy having their brother home.  Lea tries to be such a big helper, but gets upset when she is unable to do certain things like feeding Cooper.  It has been interesting, but wonderful.

Right now I am enjoying watching Cooper giggle in his sleep.  I truly feel blessed.

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